Welcome to the Horvath Foundation

for Central Nervous System Lymphoma

Finding us means that you, a loved one or someone you care about has been diagnosed with either Primary Central Nervous System Lymphoma (PCNSL), Secondary Central Nervous System Lymphoma (SCNSL) or it is not yet certain but all symptoms point in that direction.

CNS lymphoma is a rare extranodal non-Hodgkin lymphoma typically confined to the brain, eyes, and cerebrospinal fluid without evidence of systemic spread . Even though your first google results show a rather grim outlook, the prognosis of patients with CNSL has improved during the last years with the introduction of specific chemo regimens or oral medications.

These sites are here for support and to provide you with information about the disease and the different treatment options available. We do not guarantee a complete list of treatment options, and there might be other, newer treatment options available, but our foundation is trying to bring as much information to you as possible. Please visit the sites and sign up for our newsletter to stay informed about the progress of these sites and our foundation.

Before leaving you with your research

Please note the following very important points guiding so many through this cancer journey. Specifically for CNS Lymphoma patients, it can be a life-saving guideline:

1. Patients need an advocate that speaks for them during this journey. Times will be challenging, and while the patient concentrates on getting well, it is imperative that someone is there to advocate for the patient in case the patient doesn’t feel like it. If possible, have someone with you to doctor appointments and even during treatment.

2. Seek an experienced physician (oncologist, neuro-oncologist, or hematologist). This is a rare disease, and physicians with experience are your best bet. However, it is a small community, and specific names of physicians are frequently mentioned in publications or other medical articles. We will soon try to comprise a list of all known physicians with experience in this rare disease.

3. Ask for a second opinion. It is about your life, and most of the time, it is essential to ask for a second opinion to ensure the best outcome.

We wish you or your loved one the very best on this journey, and please rest assured that even though this disease is rare, thousands of people survived it, and our community is living proof of it.